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Bright, Sunshiny Day
Today was a pretty decent day for me. Got up very late, which is not unusual. I seem to get my best sleep in the mornings and often get up sometime between 10:30 and 3:30. Today was closer to the...
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Catch 527
You know what? Disabilities suck; some more than others, but they all suck in some fashion. I am not here writing this to say ‘mine is worse than yours’ or to compare. In my personal estimation, we are...
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The scent of Rosemary
I find gardening very therapeutic. When your body is busy betraying you, there is something empowering about nurturing a living thing, watching it grow, being an integral part of that process. It is...
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Outstanding morning, but…
I had such a wonderful morning for a POTsy. Woke up to find the antique custom wrought iron railings my grandmother had made for her mother in New Orleans installed! The forms were almost finished for...
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Epic Fail
I mean to tell you, I really HATE this stupid POTS right now. I’m miffed on so many levels. Let me back up. We had made an appointment at the vet’s office for The Boo and the baby kitties. That was set...
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Salt This (again)
The Rock Farm Oasis has come a long way. It all started with a replacement pool (I had a really cheap one that lasted several seasons, but last summer, it was pretty ghetto–held together with tape and...
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Dysautonomic Athletes and a Theory
There has been some interesting discussion in one of my Facebook support groups about reconditioning as related to POTS, and theories on why so many athletes or highly athletic people seem to fall prey...
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Hyper POTS?
Thanks to some help from a friend, who ran my readings through a statistical routine, he thought it looks like I am more likely hyper pots than combo. I will have to have my norepi levels checked to...
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There’s a big ‘L’ on my forehead!
First go read this: Living with Bob (Dysautonomia): “Should I go to the ER?”, and other dumb questions I ask myself. Once again, my POTS twin in Oz has nailed it. What she wrote, linked above, is a...
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Embracing the unexpected
I am about to do something I could not have even imagined doing earlier this morning, when I awoke for pain meds, a small snack, and the intent to return to bed…and was greeted with a comment awaiting...
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To Err is Expected
iBP Graph It is definitely a challenge getting a reading when my pulse pressure (PP) drops really low. No method or cuff will get a reading every time when it is really low. I was asked about how to...
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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Lets Feel Better and Shae Eclectique Team Up for P.O.T.S Giveaway! | Lets...
Lets Feel Better and Shae Eclectique Team Up for P.O.T.S Giveaway! | Lets Feel Better. You can enter to win this bracelet…details and entry at the link above Posted with Blogsy Filed under:...
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Time Management Old School Industrial Style
As you may know, I’ve been struggling with the ever changing ‘new norm’ and attempting to recover from a setback that affected (among other things) the routine flow of orders shipping from my little...
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Atrophy: wasting away, wasting time.
About Shae Eclectique If you've been following the saga of my little handmade jewelry shop, Shae Eclectique, you know I've fallen far behind in the last several months, and that things have become more...
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Zebra Soup
Pool heater furnace fiasco. I’ll spare you the smoke filled details, except to say my clumsiness had nothing to do with it, nor did my POTSie brain fog; I was not near it when things went awry....
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Why ‘Hope’ is a four letter word…
Today is my EMG Nerve Study (quadrilateral) to find out what the deal is with my hand atrophy (left hand below) and other neuropathy related issues. I'm fine with the test; done it before. Nervous...
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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Jaded no more…
Awesome news!!!!! I got a fat folder from the Veteran’s Administration in the mail Thursday… drumroll, please…. I am now at 100% (service connected) on my VA Disability!!! Technically 170% – I was at...
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The River Denial
After all this time, I still occasionally talk myself into thinking Dysautonomia and it’s crappy comorbidites are a bad figmoid of my imagination, a night terror, or a narcoleptic hypnagogic...
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Reality check
People tend to say, “it’s just a rough patch, it will get better,” but it’s not, and it doesn’t. That’s just a pragmatic fact. Reality is what it is. I am on a very long downward slope, for which there...
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With humble gratitude…
A treasured friend shared this with me on Facebook, and I want to share it here as well with my friends and family who are there for me no matter what. I am so grateful for each of you. You each make...
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Cognitive Disarray
I’ve been unable to make the progress I’d hoped getting the refunds finished. What follows is an update on status of refunds, as well as an explanation. I need to download the CVS file of all the...
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Go To Your Happy Place – Ripples in the Pond
Recently, two of my Happy moments were featured at Happier, and that did make me smile. Two tiny pebbles in the happy pond! What is Happier? It’s this nifty little app I found a few weeks ago, and...
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Legions of Lesions: in the trenches
I’ve changed my ‘protocol’ significantly. I’ve learned a lot since first writing these posts. I’m finally on a better track with it. I have a long battle still ahead, but have found some good artillery...
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